When I went to my first appointment at the CAU (Community Addiction Unit) in Cardiff and asked for help in stopping using heroin and crack cocaine, I was told that they could give me methadone for the heroin addiction and there wasn't anything they could do for the crack habit. So I went on to methadone, starting at 20ml/day.
I told them that I was injecting a lot of heroin ( 1-2 grams/day), so would that amount of methadone be enough for me? I was then advised to 'top up with heroin' until the methadone had gone up to a high enough dose to hold me on it's own, and then to gradually reduce my heroin use. The problem was I couldn't control the amount of heroin I used, that depended solely on the amount of money I had, and nothing else! So I ended up on 120ml/day of methadone and I was still using the same amount, if not more, of heroin. I'd gone in with 2 addictions and come out with 3, in a right daze - basically I was up the creek without a paddle!
When push came to shove and I ended up in hospital, with an unconnected injury, for 8 months, I decided to look into rehab options. I met with my CAU key worker, explained that I wanted to get off the methadone as I wasn't using heroin anymore, and go to a rehab, I was told in no uncertain terms that she thought I wasn't ready for rehab and the local authority wouldn't be funding it.
As it happens that was probably for the best as I found a rehab myself, funded by housing benefit in Cardiff, that had a place for me. So I left hospital and went straight into LivingStones Rehab. I wanted to discuss reducing my methadone, so at this point I went to see my key worker again, really chuffed to be able to give my first negative urine sample(negative for heroin), She said that's great but I'd like to increase your methadone dose, just in case. I couldn't believe it, why raise it? I'd stopped taking heroin, was in a stable environment, with support and they wanted to raise my dose? After a lengthy discussion, she agreed to not increasing it but would have none of it when it came to talk of reducing it.
So I decided to write my own reduction plan, as I was on weekly pickup it was possible for me to measure it myself and discard the remainder. I decided on 10% drops every week, until I was completely off it. I let my key worker know my plan, accepted the flack she gave me and got on with it.
Every time I went in for an appointment after that I ended up being chastised for reducing myself,it was going smoothly but she still wouldn't agree to reducing as I wanted and would only drop it to the level I was on that day, so by the next week I was having to measure it and throw away the excess again. No matter what I said or how I explained it, the CAU would not reduce it for me, worse than that they put every barrier possible in front of me. This went on for months, in fact it wasn't until I was on 8ml/day that they realised I was serious about coming off methadone for good and actually started to reduce it for me when I asked.
At a time when I was taking huge steps forward the CAU were trying to drag me back at every opportunity, that was how it felt to me. I'd go as far to say they made it a lot harder than it could of been, it was only because I was so certain that I was making the right decision did I continue it alone. I didn't want to have to argue my point and defend my position at every appointment, I wanted supporting in what I was doing. It was my decision to reduce and it was a decision I didn't make lightly. But I was forced to fight a pitched battle all the way through my reduction.
It took me just over 5 months to get off 120ml/day of methadone, the sweating went on a lot longer but has also improved vastly! But there is one thing I'd like to know - Why was there so much opposition from the CAU to me coming off methadone? I have my own ideas about that but if there's anyone else out there who can help me understand this, then please let me know!
I'd like to add that I know the way the CAU acted was obviously in accordance with the directives passed down to them, and weren't local decisions. So the real question is - Why is it this way?